Edited by Sarah Cornell, Monday, 24 Aug 2015, 07:55
Time is marching on, and now it's the very end of week 4.
It's still quite boring, which I should emphasise is a very good thing. Still nothing worth speaking of in the way of nausea and headaches. Still able to sleep at an international competitive level, although the problem with that is that while I'm asleep I can't drink, so a long night's sleep is lovely but takes me time to get going the morning after while waiting for the water level to replenish. Seem to be averaging about three litres a day (mostly water, occasional fizzy/squash/juice, very occasional hot chocolate or tea!)
I do seem to be leaving a lot of hair around the place, and after I brush it a mini-clump will come out in my hands ... but I still can't find where it's falling out of! So there's obviously plenty left. But don't invite me round to sit on your nice new black sofa unless you want it to look more messy than if our cat hat been rolling around on it.
I had the consultant review on Thursday, which was again nice and quick with not much to talk about. There was a student in doing some work experience - who was instructed to look at my eyes to see my dilated right pupil (again, described as an 'interesting presentation'). Then I demonstrated my right eye's restricted range of movement and described how looking forwards my vision is fine, and so I can move my head to look in any direction, but if I move my eye to look at the extremes of any direction then I get double vision (because my right eye doesn't move so far as my left does, and then the image from each eye is different and so can't fuse).
What I'm now realising is that all these medical types get excited over what my eye does/doesn't do, but I don't get to see what they're excited about! The orthoptist took some photos at my first visit to her and showed me them, but I'm going to have to muck about with my phone to see for myself what it is still doing/not doing :D
The consultant was pleased with how well it was going - I am obviously glad to be having a relatively easy time of this, I can only hope that modern treatments and technology mean that if any of you reading this has to go through something similar, you get such a good result too!
Yesterday (Saturday) I had a day out in London with friends, which was super. Exhausting, once I was home, but very nice to be able to still do something so normal as a day out (especially with super people who make concessions like getting the tube one stop instead of walking a mile and bit like we would do normally. Which is not an inconsiderable concession, when you consider it means getting on the underground in 30 degree heat!)
Today I'm off to fix my mum's computer. Everything is so very normal
Week 4
Time is marching on, and now it's the very end of week 4.
It's still quite boring, which I should emphasise is a very good thing. Still nothing worth speaking of in the way of nausea and headaches. Still able to sleep at an international competitive level, although the problem with that is that while I'm asleep I can't drink, so a long night's sleep is lovely but takes me time to get going the morning after while waiting for the water level to replenish. Seem to be averaging about three litres a day (mostly water, occasional fizzy/squash/juice, very occasional hot chocolate or tea!)
I do seem to be leaving a lot of hair around the place, and after I brush it a mini-clump will come out in my hands ... but I still can't find where it's falling out of! So there's obviously plenty left. But don't invite me round to sit on your nice new black sofa unless you want it to look more messy than if our cat hat been rolling around on it.
I had the consultant review on Thursday, which was again nice and quick with not much to talk about. There was a student in doing some work experience - who was instructed to look at my eyes to see my dilated right pupil (again, described as an 'interesting presentation'). Then I demonstrated my right eye's restricted range of movement and described how looking forwards my vision is fine, and so I can move my head to look in any direction, but if I move my eye to look at the extremes of any direction then I get double vision (because my right eye doesn't move so far as my left does, and then the image from each eye is different and so can't fuse).
What I'm now realising is that all these medical types get excited over what my eye does/doesn't do, but I don't get to see what they're excited about! The orthoptist took some photos at my first visit to her and showed me them, but I'm going to have to muck about with my phone to see for myself what it is still doing/not doing :D
The consultant was pleased with how well it was going - I am obviously glad to be having a relatively easy time of this, I can only hope that modern treatments and technology mean that if any of you reading this has to go through something similar, you get such a good result too!
Yesterday (Saturday) I had a day out in London with friends, which was super. Exhausting, once I was home, but very nice to be able to still do something so normal as a day out (especially with super people who make concessions like getting the tube one stop instead of walking a mile and bit like we would do normally. Which is not an inconsiderable concession, when you consider it means getting on the underground in 30 degree heat!)
Today I'm off to fix my mum's computer. Everything is so very normal