The previous news that I had several new bone metastases turned out to be not so bad after all.
Even though there are new sites, they are very small and not even worth hitting with radiotherapy at this stage. Even the most serious, on my hip, was well away from both the ball & socket joint and the weaker narrow bridge between the ball and the femur, so not expected to be a problem for quite some time.
Since the Lenvatinib isn't/wasn't effective against the bone lesions, I'm going to start chemotherapy pretty soon: I've had blood tests and received an appointment for a consultation next Tuesday, so I expect they'll be starting the chemo very soon after that. Looking forwards to playing my eCorder for an hour or so while I'm hooked-up to the IV 😎
My back is nearly back to how it was before my hernia admission, so that's good. I realised it's over a year since my last physiotherapy session which I thought was to help me mobilise better after my bowel surgery, but was actually a few months after my GP had referred me for my back pain, but they didn't know about my L1/T12 spinal lesion that had been diagnosed since then and so couldn't risk doing anything back then. However, I was thinking recently that I bend my back when I transition from sitting to standing and when getting in and out of bed, so some degree of movement is obviously safe and not subjecting me to MSCC (malignant spinal cord compression). Consequently, I'm thinking that a senior/consultant physiotherapist armed with knowledge about my condition might be able to prescribe at least some exercises that would be safe but might improve my musculoskeletal back pain and reduce my need for painkillers (the GP currently prescribes me 7 boxes of 28 codeine tablets every 4 or 5 weeks, plus some tramdol inbetween). When I suggested this via the NHS app to my GP surgery I got a call within 30 minutes offering me an appointment next week so they can refer me - hurrah!!
I can't remember if I mentioned this before, but ever since having the devastating news a year and a half ago that my thyroid cancer had metastasised, I now really cherish everything that isn't crap news! Even neutral news is good! 🤗🌞. It's funny how life-changing news can change your disposition to the positive once you've got over the crapness of it. I actively seek out and find happiness far more than I did pre-cancer 😁
That's all for now, folks,
I'll update you when I know more
🖖(that's a Vulcan 'live long and prosper' ☺️)
Comments
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I was scared to read this blog entry after the last one, but I'm glad that I did.
Hope the chemo goes well and isn't too debilitating.
Hooray for the physio, hope it helps too.
I was wondering if you'd mind if I posted the link to your blog into the Hylo forum, before we lose this one? It can have a thread to itself, and you can let us know there, when there are updates?
Julia xx
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I wasn't sure about reading it either, because I didn't get through the last one, but I didn't know if your blog is transferring to the other platform/s.
It's good that there is some optimism in the midst of what's going on, Chris ♥️
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Hope the physio and chemo treatments help, Chris.
🖖🖖
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Well, that sounds better than a poke in the eye with a sharp stick, as one of my ex-colleagues used to say! Best wishes for your further treatment, Chris.
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No dsastera this week apart fr on spelling.
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All the best for the chemo. We're rooting for you, Chris. 🤗
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Hope the chemo goes well, Chris. 💗
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That's an encouraging start to the year. It's good that your suggestions are being taken seriously - you are the expert on you. I hope the year continues to be a good one for you.
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Hope it all keeps working for you and good luck with the chemo, which is a far more subtle tool than the old days, so I feel really hopeful for you Chris,
Yes through balancing a toxic complaint and poor health (I can’t complain compared to you Chris.,.. but i do! 😊) through all this, i was just saying in SQ I have learnt to lean into the good stuff and thanks for saying the neutral stuff,. I have or I make more time to stop and look at life; clouds, nature, people sunsets, skies. All of it.,
Lots of love Chris, you are such an inspiration, and you know me I beleive your attitude affects your health.
That reminds me, I still haven’t received your order for homeopathic remedies, but sending good wishes regardless. 😊❤️
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Hope it all keeps working for you and good luck with the chemo, which is a far more subtle tool than the old days, so I feel really hopeful for you Chris,
Yes through balancing a toxic complaint and poor health (I can’t complain compared to you Chris.,.. but i do! 😊) through all this, i was just saying in SQ I have learnt to lean into the good stuff and thanks for saying the neutral stuff,. I have or I make more time to stop and look at life; clouds, nature, people sunsets, skies. All of it.,
Lots of love Chris, you are such an inspiration, and you know me I beleive your attitude affects your health.
That reminds me, I still haven’t received your order for homeopathic remedies, but sending good wishes regardless. 😊❤️
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Well done, Chris. Yes, happiness is noticing the littles that so easily get lost in the larges🌼
thyroid cancer
Hi Chris
It's good to see you staying positive through all the "stuff" going on - and it's a lot. I had thyroid cancer many years ago resulting in an operation and although I did look like Frankenstein's monster for a while the scarring settled to the point now where people proclaim "no", "did you", "I can't see a scar" - either they think I am a liar or they just don't think (haa) All is good now and the great thing about being the one who is ill is that you are being looked after. It's called "the squeaky gate syndrome" - if you have a squeaky gate you oil it, fix it, update it and it lasts forever - that one which never squeaks just one day falls off and needs replacing. so well done on being the squeaky gate.
I wish you the very best in all your recoveries - whatever our strange bodies offer us as challenges. Thank you for sharing.
Take care of yourself and I don't need to say enjoy the little wins ;)