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This is the second in a series of two blog posts about the 2015 Open University Disability conference. 

Keynote: the disability delusion

The first keynote of the day was by Tom McAlpine OBE who is a chair of a charity called Moodswings (charity website). Tom’s talk began by taking us into the history of the current disability legislation, highlighting that there has been (and continues to be) a stark difference between attention given to physical and mental health disabilities. 

He presented the audience with an interesting yet important question which was: ‘who is disabled?’  This question was linked to two philosophies which are connected with the social model of disability; the view that ‘either everyone is disabled, or nobody is disabled’.  Another interesting point was about the link between welfare and disability, and extent to which ‘austerity’ is affecting the lives of people who have disabilities: ‘it’s going to be worse than everyone imagined’.  The point was made that there should be a ‘proper use of resources’.  Individuals, it was argued, should only take as little from the state as they need. 

During Tom’s talk, I made the following note: ‘if we’re going to be fair, we shouldn’t pretend that everyone is disabled’.   I don’t think this is what he said word for word, but instead, it might be more of my impression of the point that he was trying to get across.  It is a view that I, fundamentally, take issue with.  It is a view that equates disability with the consumption of resources, and I think that the whole subject is a whole lot more complex.  You can have a disability (or an impairment of some kind), and get on with living your day to day life, and may have no recourse to need additional resources.  All you might need to get by is a bit of respect and understanding from others who are around you.

Tom’s talk was pretty provocative, and led to quite a bit of debate amongst colleagues who I spoke to.  This, I felt, was a sign that the keynote had done its job (irrespective of whether or not I personally agreed with some of the views that were expressed).

Workshop: Student mental health – whose responsibility?

The first workshop I signed up for on the second day was also by Tom.  Tom opened by stating that mental health issues may manifest themselves during study, due to change of circumstances or due to things that happen during life. He also mentioned that it is important to consider the difference between pre-existing mental health issues, and that sometimes the pressures of studying may make some students (who may be predisposed to illness) unwell.

Another point I remember was the importance of appropriate boundary setting.  This is linked to the point that there are limits to what the university can do: it can only provide help and guidance regarding study and academic issues.

During the talk I made the note: ‘wellness is a continuum’.  This was a theme that was highlighted during the London region diversity day that was specifically about mental health issues.  This part of Tom’s workshop offered a reminder that everyone can move between and onto different parts of a mental health continuum.

During the workshop, Tom also offered some controversial opinions about certain illnesses and also the roles of some tutors.  It was clear that he had particularly strong opinions, and my own opinions (which were also pretty strong) were somewhat different.  Education can be difficult whilst at the same time being transformative.  My own view is that a positive relationship between a student and a tutor is important (if not essential) to facilitate the exploring of different perspectives and views that can lead to a transformation.  I doubt very much that Tom would disagree with this view.  Our difference of opinion relates to judgement as to whether a tutor is doing something wrong if a student feels compelled to contact a tutor for support for unexpected issues.  My role is then to support that tutor, and to do my best to work with other colleagues to communicate boundaries.

In some respects Tom’s session was more of a chat than a workshop.  It was different to what I had expected, but is no better for it; there were many colleagues who were very free to express their opinions about a range of different issues.

During the session, we were reminded of a useful resources, a OU published booklet that is entitled: Studying and staying mentally healthy (OU website).  I heard that this resource is going to be made available to all students, not just students who may have disclosed a mental health issues.

Workshop: Universal design for learning – built in accessibility

The final workshop of the conference was facilitated by Heather Mole, who I managed to have a good chat with during the conference.  Heather is currently working on a really interesting PhD, which she might have mentioned during her workshop.  She has been looking into the privilege of sign-language interpreters, since they cross the boundaries of two different cultures: the Deaf culture, and our hearing culture.  This made me reflect about the connections between disability studies, other subjects, and other civil rights areas.

Heather began by playing an excerpt from a short film by Judith Butler and Sunaura Taylor called An Examined Life  (YouTube)  As the film played, I made notes of the terms ‘normalising standards of our movements’, ‘disability as a political issue’ and ‘talking of language’.

I then remember some discussions about the different models of disability: the social model and the medical model.  Heather also mentioned the work of Tom Shakespeare, who is both an activist and a scholar.  Another philosophical model that was mentioned was the interactional model, which is an acknowledgement that an actual impairment is important.  I understand this model to be a combination of the social and medical models.  As Heather was speaking, I realised that I needed to do some reading!

I made an interesting note that accessibility can be thought of in two different ways.  There’s the accommodation approach, where there might be the need for an alternative way of doing things.  This could be thought of a ‘consumable’ approach.  For instance, a module team or a teacher might make a resource that was specific to an individual learner.  Another approach is universal design, which can be considered, broadly, as more ‘sustainable’: accessibility is considered from the outset and is considered at the design level.

We were told that a chap called Ron Mace created what is known as seven principles that guide ‘universal’ architectural design.  These principles are: equitable use, flexibility in use, simple and intuitive use, tolerance for error, low physical effort, size and space for approach and use, perceptual information (i.e. alarms that offer information through different modalities: they emit a sound and flash at the same time).  

These principles can be applied to an educational context; educators can consider both the universal accessibility of their learning resources, and the systems, products or devices which allow the learning resources to be consumed (we might think of ‘products’ in terms of a series of web pages, an ebook, or a physical paper based book).

During this final workshop, we were directed to a couple of websites.  One of them was called the Centre for applied special technology group (CAST website).  Another organisation that was mentioned was the National Centre on Universal Design for Learning (UDL website).

Final keynote: an accidental comedian

I’ll give a cheeky admission at this point: it was yours truly who gave the final keynote.  The keynote had two parts: a story, and then a performance.  My point was simple: we can achieve more than we ever thought possible if we offer other people encouragement.  In some respects, this is exactly what so many people within the university try to do: academic staff, support staff, and associate lecturers; we do our best to offer encouragement and support for those who are studying.

Final thoughts

One thing that always strikes me about these conferences is the range of different subjects, workshops and speakers.  This year there were keynotes that delivered different perspectives, and workshops that presented a broad range of topics.  I personally found the workshop about the ‘tech’ particularly interesting (I think because I’m a ‘tech’ sort of guy), and I also found the talk on autism interesting, if only to remind me that there is a wealth of advice and resources that I can draw upon. 

There was an implicit theme and an implicit concern that seemed to run throughout the conference: the sense that things have become more difficult for people who have disabilities, and things are going to continue to become even more challenging.  The underlying story that catalysed the expression of these concerns was, of course, the recent change in government.  Resources, it was argued, are limited, and it’s important to ensure that they are used as effectively and efficiently as possible.

After the conference, I asked myself a quick question, which was: ‘what else could there have been?’, or ‘what would I find really interesting?’  Over the last couple of years, I’ve been increasingly aware of an emerging academic subject called disability studies.  Whilst the objective of the conference has strong and really useful practical focus, I can’t help but feel that a more academic perspective might add something to aspects of the conference.  Disability studies connect to different civil rights movements, the role of the media, analysis of barriers, and how the situation for people with disabilities is different across the globe. 

One thing that was really great, and has always been great, is the presentation of personal perspectives: the student voice is, of course, really important.

Finally, PowerPoint and other resources from the conference (conference materials) are available to internal university people, but if you’re reading this from outside the university, if there’s anything that is of particular interest, don’t hesitate to get in touch.

Keynote: positive thinking

The first keynote of the day was by motivational speaker, David Hodgson.  The title of his session was, ‘the four key ways to happiness and success’ (which was a really very ambitious title, if you ask me!)  I’ve seen David talk before at a staff development day in London, where he encouraged us to reflect upon our Myers-Briggs personality profile.  Apparently, this was the focus of a later workshop that he ran later during the morning.

So, what are the four key ways?  Thankfully, I was sufficiently caffeinated to be able to take a note of them.  They are: (1) know yourself (and the great things that you’re capable of), (2) having self-belief, (3) have a plan (of some kind), and (4) have a growth attitude.   Of course, I’m paraphrasing, but, all in all, these are pretty good points to think about.

David also presented us with a quote from Abraham Maslow, who proposed his eponymous Hierarchy of Needs (Wikipedia).  The quote goes:  ‘If you plan on being anything less than you are capable of being, you will probably be unhappy all the days of your life.’  Maslow might have accompanied that quote with a wagging finger and the words, ‘you really need to sort yourself out’.  I had these words rattling around my head for next two days.

Workshop: Learning design for accessibility

The first workshop of the day was facilitated by Lisette Toetenel and Annie Bryan from the OU’s Institute of Educational Technology.  The focus of the event was a learning design tool that IET had created to help module teams consider different pedagogic approaches.  It has been embedded into the module design process, which means that module chairs have to signify that they’ve engaged with IET’s learning design framework.  Through my involvement with a new module, I had heard a little about it, but I didn’t know the detail.

Learning design was defined as, ‘the practice of planning, sequencing and managing learning activities’, usually using ICT tools to support both design and delivery.  An important point was that both accessibility and important areas such as employability skills need to be considered from the outset (or be ‘woven into’ a design) and certainly not ‘bolted on’ as an after-thought.

The learning design framework is embedded into a tool, which takes the form of a template that either module members or a module chair has to complete.  Its objective is to improve quality, sharing of good practice, speed up decision making process, and manage (and plan) student workload.  The tool has an accompanying Learning Design website  (but you might have to be a member of the university to view this).

During the workshop we were divided up into different tables and asked to read through a scenario.  Our table was given an ‘environmental sciences’ scenario.  We were asked three questions: ‘what exactly do students do [in the scenario], and how do (or might) they spend their time?’ and what accessibility problems they might be confronted with.

The point was clear: it’s important to consider potential barriers to learning as early and as soon as you can.

Keynote: SpLDs – The Elephant in the Counselling Room: recognising dyspraxia in adults

The final keynote of the conference was given by Maxine Roper (personal website).  Maxine describes herself as freelance journalist and writer, and a member of the dyspraxia foundation.

One of the main themes of her keynote was the relationship between dyspraxia and mental health.  Now, I’ll be the first to say that I don’t know very much about dyspraxia.  Here’s what I’ve found on the Dyspraxia Foundation website: ‘Dyspraxia, a form of developmental coordination disorder (DCD) is a common disorder affecting fine and/or gross motor coordination, in children and adults. … dyspraxia [can also refer] to those people who have additional problems planning, organising and carrying out movements in the right order in everyday situations.’

I was struck by how honest and personal Maxine’s talk was.  Dyspraxis is, of course, a hidden disability.  Maxine said that dyspraxics are good at hiding their difficulities and their differences, and spoke at length about the psychological impact.  An interesting statistic is that ‘a dyspraxic child is 4 times more likely to develop significant psychological problems by the age of 16’ (from the Dyspraxia Foundation).

Some of the effects can include seeing other people more capable, being ‘over givers’ with a view to maintaining friendships, but other people might go the other way and become unnecessarily aggressive (as a strategy to covering up ‘difference’).  Sometimes people may get reactive depression in response to the continual challenge of coping.

I found Maxine’s description of the psychological impact of having a hidden disability fascinating – it is a subject that I could very easily relate to because I also have a hidden disability (and one that I have also tried a long time to hide).  This made me ask myself an obvious question that might well have an obvious answer, which was ‘are these thoughts, and the psychological impact common across other types of hidden disabilities?’ 

So, what might the solutions be?  Maxine offered a number of answers: one solution could be to raise awareness.  This would mean awareness amongst students, and amongst student councillors and those who offer support and guidance.

I noted down another sentence that was really interesting and important, and this was the point about coping strategies.  People develop coping strategies to get by, but these coping strategies might not necessarily be the most appropriate or best approach to adopt.  In some cases it might necessary to unpick layers of accumulated strategies to move forward, and doing this has the potential to be really tough.

Maxine’s presentation contained a lot of points, and one of the key one for me (the elephant in the room), was that it’s important to always deal with the person as a whole, and that perhaps there might be (sometimes) other reasons why students might be struggling.

Workshop : Through new eyes – understanding the experience of blind and partially sighted learners

The final workshop of the conference was given by my colleague Richard Walker, who works as an associate lecturer for the Maths Computing and Technology Faculty.  Like Maxine’s keynote, Richard’s spoke from his own experience, and I found his story and descriptions compelling and insightful.

Richard told us that he had worked with a number of blind and partially sighted students over the years.  He challenged us with an interesting statistic: if we consider the number of people in the general population who have visual impairments, and if an associate lecturer tutors a subject for around ten or so years, this means there is a 90% chance that a tutor will encounter a student who has a visual impairment.  The message is clear: we need to be thinking about how to support our students, which also means how we need to support our associate lecturers too.

Richard has had a stroke which has affected his vision.  Overnight, he became a partially sighted tutor.  ‘This changed how I saw the world’, he said. 

One of his comments has clearly stuck in my mind.  Richard said that when he was in hospital he immediately wanted to get back to work.  Richard later started a blog to document and share his experiences, and I’ve also made a note of him saying that he ‘couldn’t wait to start my new career’, and ‘when I got home from hospital I wanted to download some software so I can continue to be an Open University tutor’.

Richard spoke about the human visual system, which was fascinating stuff, where he talked about the working of the eye and our peripheral vision.  He presented simulations of different visual impairments though a series of carefully drawn PowerPoint slides.    On the subject of PowerPoint, he also spoke briefly about how to make PowerPoint accessible.  His tips were: keep bullet points very short, choose background and foreground colours that have a good contrast, and ensure that you have figure descriptions.

I was struck by Richard’s can-do attitude (and I’m sure others were too).  He said, ‘the whole world looks a bit different, and I like learning new stuff, so I learnt it’.  An implication of becoming partially sighted was that this affected his ability it read.  It was a skill that had to be re-learnt or re-discovered, which sounds like a pretty significant feat.  ‘I just kept looking at the lines, and I’ve learnt to read again.  You just experiment [with how to move your eyes] and you see what works’.

When faced the change in his vision, he contacted his staff tutor for advice, and some accommodations were put in place.  Another point that stood out for me was the importance of trust; his line manager clearly trusted Richard’s judgement about what he could and could not do.

Sharing experience

Richard tutors on a module called M250 Object-oriented programming (OU website).  When student study M250 they write small programs using a software development environment.    Richard made the observation that some software development environments can be ‘hostile to assistive technology’, such as screen readers.

Richard is currently tutoring a student who has a visual impairment.  To learn more about the student’s experience, he interviewed the student by email – this led to creation of a ‘script’.  With help from a workshop delegate, Richard re-enacted his interview, where he asked about challenges, assistive technologies, study strategies and what could be done to improve things. We learnt about the use of Daisy talking books (Wikipedia), the fact that everything takes longer, about strategies for interactive with computers, and the design of ‘dead tree’ books that could be read using a scanner.  After the performance, we were set an activity to share views about what we learnt from the interview (if I remember correctly).

Towards the end of the workshop, Richard facilitated a short discussion about new forms of assistive technologies and ubiquitous computing, and how devices such as Google Glass might be useful; thought provoking stuff.

I enjoyed Richard’s session; it was delivered with an infectious enthusiasm and a personal perspective.  The final words that I’ve noted down in my notebook are: ‘it’s not because I’ve got a strength of character, it’s because I love my work … you just have got to get on with it’

Reflections

Like all the others, this year’s disabled student services conference was both useful and enjoyable.  These events represent an invaluable opportunity to learn new things, to network with colleagues, and to take time out from the day job to reflect on the challenges that learner’s face (and what we might be able to do to make things easier).

For me, there were a couple of highlights.  The first was Keith’s understated but utterly engaging keynote.  The second was Richard Walkers workshop: I had never seen Richard ‘in action’ before, and he did a great job of facilitation.  In terms of learning, I learnt a lot from Maxine’s talk, and it was really interesting to reflect upon the emotional and psychological impact that a hidden disability can have on someone.  I feel it’s an issue that is easily overlooked, and is something that I’ll continue to mull over.  In some respects, it has emphasised, to me, how demanding and important the role of learning support advisors role is to the university.

One question that I have asked myself is: ‘what else could be done within the conference?’  This, I think, is a pretty difficult question to ask, since everything was organised very well, and the whole event was very well attended.

One thought is about drama.  Richard’s session contained a hint of drama, where he used a fellow delegate to read a script of his email interview.  I’ve attended a number of excellent sessions in the East Grinstead region (which is now, sadly, going to be closed) that made use of ‘forum theatre’.  Perhaps this is an approach that could be used to allow us to expose issues and question our own understandings of the needs of our students.  Much food for thought.

I've have a fun couple of days.  I recently attended the Open University's 2010 Disabled Student Services conference.  Okay, I admit, I probably gate crashed the event since I'm not a member of the DSS group, but it was certainly a very worthwhile thing to do.  On more than one occasion colleagues said to me, 'it's great to have someone like you here; we certainly need more faculty at these events'.

The overall objectives of the conference were to develop greater awareness of issues affecting the sector, to gain information about developments within the University, gain a greater understanding of the needs of specific disabilities, work towards more standardised delivery of services and, of course, to find out what each other does.

For me, this conference was all about learning about the different roles that people have, and what information needed to be shared to ensure that all our learners get the best possible service.

Tuesday 9th November

A conference is not really a conference without a keynote.  The first day kicked off with a keynote by Will Swann who is responsible for the development, promotion and evaluation of services to support the teaching of students.

The part of Will's presentation that jumped out at me was a concise presentation of the potential ramifications of changes to Higher Education funding.  One thing was clear: things are going to change, but we're not quite sure exactly how they will change.  The changes may affect those students who wish to study for personal development as opposed to choosing to study for purely economic and career development reasons.  Underneath is an interesting philosophical debate about what higher education is good for.  Essentially, Will asked us to consider the challenge of how to maintain effective provision of services in a world where change is a certainty.

First workshop

Following the keynote, we were led toward the first set of workshops.  I attended a workshop that perhaps had the longest title: Exceptional examination arrangements and special circumstances, policies and procedures.  The event was facilitated by Ilse Berry and Peter Taylor.  Peter is the chair of the subcommittee which makes decisions about very many things exam related, such as whether individual students may be able to defer exams (due to changes in personal circumstances), or whether alternative examination arrangements could be organised.

I got a lot out of this first workshop: I gained more of an understanding of the procedures and policies, and the effect that the Disability Discrimination Act (now the Equality Act) has on these policies.  There was some debate about whether everyone knows everything they should know to best advise our students.  There was some discussion about Associate Lecturers, and I feel that I need to ask whether it might be possible to offer some internal staff development training to those who most closely work with students.

I also learnt quite a bit about the range of different examination arrangements that can be put in place.  I never knew that an exam could be taken over an extended period of time, for example.  It was all very thought provoking and showed me how much we try to collectively help.

Student session

I was unable to attend the afternoon event due to a meeting with a colleague in another department, but I was able to return to the conference in time to hear one of the student sessions.  Alex Wise, a student with dyslexia gave a very clear description of some of the challenges that he has faced during his educational career.  He also described some of the strategies and adaptations he both uses and has discovered.

Alex's presentation underlined a number of different points for me.  Firstly, the complexity and uniqueness of conditions such as dyslexia (I briefly studied the very broad subject of language processing when I was a postgrad student, but I was sorely missing a 'personal' perspective).  Secondly, the fact that effective strategies may only be discovered through a combination of hard won experience and trial and error.  A final point is that strategies and tools need not necessarily be high tech.

Wednesday 10th November

The second day (much like the first) was a delight.  In true academic style, I duly forgot which workshop I had signed up for, and was directed towards a session entitled, 'Sensory impairment: science course for screen readers, and D/eaf students and Openings courses - access for all?', presented by Jeff Bashton and Julie Morrison.  I was later to discover that it was two workshops for the price of one.  I had certainly chosen wisely.

Jeff works as a visual impairment advisor for the Open University.  He introduced the science project he is working on (which is a work in progress), and then he had a treat in store for all delegates.  One by one, we all donned blindfolds that Julie had given us, and we began to study two tactile diagrams (using only our touch).

I found both tactile diagrams unfathomable (which is, pretty much, an understatement!)  I could do nothing more than explore the boundaries of each diagram and get a rough understanding about its size and shape (and how the different elements were related spatially).  I couldn't make a jump from lines and bumps through to understanding a picture as a whole.  This, of course, was one of the points.  The tactile diagrams that I was presented with proved to be totally confusing without accompanying auditory descriptions.

Julie 'talked us through' each image (using our fingers!)  When I removed my blindfold, I was surprised by what I saw - it bore hardly any relationship to what I thought I was 'seeing'.

During the second part of the workshop Julie spoke about her with the British Sign Language, where she presented a small number of case studies to highlight the challenges that BSL users might face when trying to study.  To BSL users, English is, of course, a second language.  Julie's overview of the history of deaf education (and the role that Alexander Graham Bell played) was illuminating.  Thanks Julie!

This second workshop ended with a demonstration of how tough it can be to understand digital materials.  Taking a particularly accessible course as an example, Julie showed us a video without sound (it was an interview which had no subtitles of signing).  We then had a look at the transcript of the video.  The transcript contained all the peculiarities of expression that you find whenever you write down spoken language.  It was briefly considered that perhaps different learners may benefit from different versions of the same materials, which is one of the ideas embedded within the EU4ALL project I worked on for a couple of years.

A fabulous afternoon...

I struggled to give a name to the section of the conference where the delightful and charming Francesca Martinez came to talk to us for an hour or so.  It was only after just under a week of wondering did I come up with this final subheading.

I'm not joking; Francesca had us all rolling in the isles of the conference hall with laughter with a delicious mixture of political and observational stories.  There was, however, a serious tone that resonated clearly with the objectives of the conference: everyone is connected by a common thread of humanity regardless of who we are and what personal circumstances we face. 

Francesca is the best kind of comedian; one who makes us think about ourselves and the absurdities that we face.  I, for one, ended the day thinking to myself, 'I need to seize the day more'.  And seizing the day can, of course, mean making time to find out about new things (and having fun too, of course!) Linking this to studying, it is more than possible to find an abundance of fun in learning and maintain optimism about the way in which the fun present may potentially give rise to a fabulous future.

Themes

So, what were the overriding themes that I took away from the conference?  The first one was communication: we all need to talk to each other because internal policies (as well as external legislation) are subject to perpetual change and evolution.  Talk is an eternal necessity (which is what I continue to try to tell my colleagues when I sneak off to the cafe area...)

The second theme is that of information: advisors as well as students need information to make effective decisions about whether or not to take a course of study.  Accessibility, it was stated, wasn't just a matter of making sure that materials are available in different formats.  It also relates to whether or not materials can be study-able too, and this goes back to whether, for example, individual learning activities.

The final theme relates to challenges that are inherent within the changing political and economic climate.  Whilst education is priceless, it always has a financial cost.  Different ways to pay for education has the potential to affect the decision making of those who may wish to study for a wide range of different reasons (and not just to 'get a better job').

Consider, for example, a hypothetical potential student (who is incidentally fabulous) who might just 'try out' a module just to find out if he or she likes it, who then goes on to discover they are more than capable of degree level study.  A stumbling block to access is, of course, always going to be cost.  As mentioned in the conference keynote, there will be the need for creative solutions to ensure that all students are continued to be presented with equal opportunities to study.

The DSS conference has shown, to me, how much work goes behind the scenes (and how much still needs to be done) to ensure equal opportunity to study remains a reality for all.