Personal Blogs

Hey! 

I can't believe it was April the last time I wrote here. In all honesty I just forgot. I'm still waiting for my transplant it's been 2 years 3 and half months now, luckily my health seems to be stable after a few glitches earlier in the years. I've managed to go June and July without going to A&E which seems to be a accomplishment for me. 

Since I wrote I've had a a line removed and replaced which I can honestly say has to be one of the most horrid ordeals Ive had to date. being awake whilst some-one basically digs something out of your chest is not what I would call ideal especially when the anaesthetic doesn't early do what it's meant to because of the infection that you have. I'm hoping that's the last time I will have to go through that and the next time it happens they'll just take it out while I'm under having my transplant. I just wish it would happen already!

I've also been registered for my, hopefully, last module A326. It's the only one that I'm doing this year so I'm hoping I'll be able to dedicate my time to it, I didn't realise when I tried to do it last year how much work it would take and require so this time I feel a little more prepared for the amount of work it needs. I managed to Pass DD101 which is good... so one more module to go. 

I hope you are all well
Stacie xoxo 
stacie-lifeisworththefight.blogspot.co.uk

Heya Blogland, 

So it's obviously going to be a once a month thing with me updating you guys by the looks of things. Still waiting for my transplant 22 months now, I'm trying not to think about that subject LOL. I've been pretty ill the past month with various different things, trips to A&E and dealing with their "wonderful" receptionists but I think I'm on my way back up so fingers crossed it stays that way . 

With regards to my work I finally managed to pass my DD306 module whoop! Who thought that would happen? Yep no neither did I haha. I'm still working my way through DD101. It really isn't the most interesting module if I'm honest and as a self confessed procrastinator that certainly doesn't help . 

My current TMA is supposed to be in the format of a report, I've never done that before so that will be interesting we'll see how that turns out. 

But generally I'm doing well  

Check out my other blog if you want more regular updates  http://stacie-lifeisworththefight.blogspot.co.uk

Stacie xoxo

Hey Blogland, 

So yesterday I had my second false alarm for my transplant, here's how it went...

http://stacie-lifeisworththefight.blogspot.co.uk/2013/10/the-call-take-two.html

Stacie xoxo

Hey Blogland,

Well I'm making a concious effort to blog more in my OU blog, I feel like I've neglected you lot somewhat and I never intended it.

So at the moment I'm thinking about quitting A326. I seriously am not enjoying it, it just isn't what I expected and I'm far more behind than I ever intended with it. So on Monday I will be ringing up the OU and quitting that module but I'll still be doing DD306 and it means I can dedicate more of my time to the rest of it and hopefully get my grade up. The in October I plan on starting A327 and doing DD101 and then that'll complete my degree and think this is much better and I don't know why I didn't think of it before.

For those of you that are wondering about my health, I am getting worse but it'll will continue to be that way and I have accepted that. The only thing we can do now is hope I get my call in time. It's been 10 months since I was added and I would definitley say quality of life is worse and being able to do things and all that has gone downhill, but we all knew it would and I try to make sure I remember that. Most of my days are spent sleeping now I sleep at least 18 hours a day now which is also affecting my studying but I really do just hope more brave people sign the register and talk to their families about what they want.

I really want to go into schools and educate teenagers about organ donation because I really feel like they don't know enough about it and if you target the kids then it's more likely to become the norm to talk about donating organs rather than a taboo subject that no-one wants to address because they want to avoid talking about death. So I'm going to get in contact with some schools in my area and see if they will let me go in and talk in an assembly or PSHE class with probably yr 10's and above and I really think this would help get people talking because parents probably wouldn't bring it up to their kids but kids would probably just blurt it out .

So guys I hope you are all doing fabulously and I wil write again soon

Stacie xoxo

Hey guys,

Just a quick one I'm sooooooo behind on my work I'm not exaggerating either. Now I'm literally locking myself away for the week to get it done as it's the first week in I actually can't remember how long where I don't have a hospital stay or appointment to go to. I also need to get it done before the week of the 11th because thats like organ donation promotion week and I'm going to be UBER busy. Check out my blog guys if you wanna know what I'm up to :

http://stacie-lifeisworththefight.blogspot.co.uk/

Hope everyone is well in blogland and I'll try and be good and update more often

Stacie xoxo

Hey Blogland,

Yesterday was supposed to be so good, but my friend who got her heart and lung transplant has come into a lot of complications in the surgery, she's still on bypass and they haven't been able to get the heart going as of yet, they had to leave her abdomen open last night because of a bleed they couldn't control due to the warfarin most of us PHers take but by leaving it over night it has given it a chance to become a better consistency. She's in surgery again now and hopefully once they've sorted the bleed they can then concertrate on the heart and lungs.

The good thing is shes alive and hopefully they will get her sorted

Stacie xoxo

Hey guys

Here's my latest blog post

http://stacie-lifeisworththefight.blogspot.co.uk/

xoxo

Hey Blogland,

well I'm worse... it sucks... i'm still tired... very little work has happened lol.

The CT scan showed nothing but it wasn't a total waste of time it managed to provide a good look into how my lungs are working so not all bad.

I'm currently on oxygen 24/7 more than 10minutes off of it results in my breathing becoming horribly laboured so just enought time to get changed into some different PJ's lol.

The oxygen man is coming tomorrow with extra long tubing so I can get around the house abit more so that I'm not stuck in my room all the time, he's bringing a mask as well so hopefully it'll be a bit more affective than the cannula because I currently have a cold and some sinus issues so it's not working wonderfully.

So pretty much sucks to be me at the moment, but I know people who are worse so I must stop complaining. Plus christmas is fast approaching so I'm hoping the excitment of that will disapate my current grumpy state.

I hope eveyone is having a better time in blogland and hopefull my next post will be cheerful

Stacie xoxo

Heya Blogland,

Well my A326 essay is gone woop. I'm not sure the last paragraph was very good but it was getting to the stage where I was just like "Urghhhh I just want you gone" but I'm hoping for a averagish score maybe 60 if I'm lucky.

But also yeyyy because I managed to go the whole day without my oxygen I wasn't doing much but the past week I've been out of breath doing nothing so it's a start. I've got bloods tomorrow which I'm doing without oxygen, my sister is giving me a lift on her way to work but I've got to get the bus back which is a bit daunting.

oooo in other news I don't know if you guys know or remember me posting about it but my mum got made redundant from her job on the camp base back in March and shes had a few on off jobs but nothing concrete for a while but my mamager asked if my mum was still looking for work ad I said kind of. So now my mum is working with me, well not technically because she works 9-6 mon-fri and I only work on the weekends. I just hope everyone is nice to her coz I know she's really nervous.

Well I'll probably blog about the amount of work I have to do later on in the week lol

See you later Blogland

Stacie xoxo

Hey Blogland,

I'm not sure I'm very keen on my DD306 tutor very much. I just got my result back from my first TMA and I got 58 which is perfectly average for me but he was really critical about everything I wrote I don't think even a little bit pleased him. If you read my blog regularly you'll know I write as I speak and in my essays I put alot of opinion in it. But I know that alot probably wasn't to his taste but I think there's a way to be critical without being mean.

I can take criticism I've been getting it throughout school, college and my previous modules but the way he words it just comes across mean. If he's the type of person who takes the point of view "cruel to be kind" that kind of tactic doesn't work for me, it doesn't motivate me it just makes me want to quit. Which I know is kind of cutting off my nose to spite my face but thats what it makes me want to do.

It seems I'm now going to dread each and every one of my DD306 TMA's